“The Site” has a little story to tell you. It’s not long, but it says a lot.

Apparently, asking why you’ve been marked as a no-show is now a punishable offense. Good to know.

Yesterday, “The Site” asked a simple question: Why was it marked as a no-show, and left to sit staring at Tebra for an hour? Its appointment hadn’t connected due to a(n alleged) tech issue; this appears to be the new version of for the story. Yesterday, it was simply “The Site’s” fault that it didn’t show up. So a question that it assumed could be clarified and corrected with competence turned into this:

Hi,

I am sending a message to update you about a few things following the tech issues yesterday that resulted in the missed appointment.

Unfortunately, Soonercare isn’t going to cover LDN (low dose naltrexone) and although there is an option of making a DIY LDN tincture, naltrexone tablets are on backorder and haven’t been available for several months https://dps.fda.gov/drugshortages/searchresult?type=naltrexone*

In regards to the genetic testing, Soonercare has not been approving genetic testing for adults. If we had mailed the kit to you and you submitted it, you likely would have been on the hook to pay for it out of pocket, about $300. We had tried to get it approved but were unsuccessful.**

I did mean to message you about these updates. I forgot, and for that I take full responsibility.

I know as of yesterday you were likely going to be looking for a new provider. I understand your decision, and following your interactions with the front office I also think establishing care with a different office is the right thing to do. I have sent a refill of your clonazepam, and can provide 1 additional month past that (for a total of 60 days). You will need to reestablish with a new provider for any further refills.***

I am sorry we weren’t able to meet your needs, and I’m sorry you’ve had such frustrating experiences with medical providers and offices. I would just ask you try to extend a bit more understanding in the future with other medical offices/providers.

Our medical system is becoming increasingly less functional as time goes on, harder for both patients and providers to access needed care. Oklahoma in particular has minimal resources and not nearly enough providers in most areas of medicine. As someone with multiple autoimmune issues and chronic pain myself, I understand how frustrating and exhausting it can be to advocating for care you need when so many providers are either too burnt out to try or too overwhelmed with their patient load to devote the time each individual needs. Of course there are bad providers out there as well, but most people I know that work in medicine care deeply about helping others and are trying the best they can to function in a system that is designed to fail.

I wish you luck in finding the right providers for you moving forward, and again, I’m sorry I was not able to help you more.

-Taylor Tope, PA-C

Let’s start with the obvious: this isn’t an apology — it’s a termination notice dressed in therapeutic regret.

“The Site” didn’t cuss at anyone (at least not at prior to this point). It didn’t rage or threaten or demand. It calmly and quietly asked why the record reflected a no-show when the issue was technical, not willful. It sat there staring at a green dot on its computer with a message saying to just be patient, the provider would be with it in a moment. For this, “The Site” has been dismissed. Given sixty-days of benzodiazepines, and told to try and be nicer next time.

What This Reveals

This isn’t just about “The Site.” It’s about:

• A system where asking for clarity = confrontation
• A provider suggesting “DIY” for a compounded pharmaceutical because they can’t get Soonercare to pay for it
• A “good luck” and “God bless” mentality handed out in lieu of actual care

LDN, or low dose naltrexone, is one of the few off-label drugs used to treat complex autoimmune and neurological conditions. It’s non-addictive. It’s dirt cheap. And inaccessible because … the pills are on backorder? And the only workaround is kitchen alchemy? (Which is not true … please see the footnote down below. She’s a liar.)

And pharmaco-genomic testing? Denied coverage despite its potential to prevent years of failed medication trials. Denied, and then blamed on “The Site” for not absorbing the financial hit. (Again, see the footnote below.)

But the kicker? Being told to show more grace to a system that dismissed it for using its voice.

A Broken System Doesn’t Excuse Broken Behavior

Taylor Tope’s email is textbook medical gaslighting:

• Take partial responsibility while severing ties
• Acknowledge patient suffering while refusing to provide care
• Shift the burden back to the patient (“extend more understanding”)

All couched in the warm fuzz of empathy theater.

Yes, the medical system is broken. Yes, Oklahoma is a healthcare desert. But that doesn’t excuse administrative cruelty or passive-aggressive discharge letters.

This is abandonment of care, and it’s happening across this country every single day, and even more disturbingly, it is happening disproportionately to patients who are:

• Poor
• On public insurance
• Chronically ill
• Disabled
• Advocates for themselves

The Myth of the Compassionate Provider

According to her professional bio, Taylor Tope is a model of compassionate, community-minded healthcare. A National Merit Scholar. Trained at the Schusterman Center. A creator of transgender hormone protocols (this should be a red flag). An advocate for survivors of assault. A champion of addiction recovery. A provider for the LGBTQ community. (HAHAHAHAHA! Right … yeah.)

And yet when a queer, disabled patient with complex needs, asked a single question about an administrative error — she decided it was no longer worth treating.

Where, exactly, in that glowing resume does it say: terminates care when the going gets mildly inconvenient?

Where does it say: “Uplifts local communities — but only if they’re quiet about their suffering?”

How many others have received this same tidy ejection wrapped in performative empathy?

Final Notes from the Alleged No-Show

So here it is.

Marked a no-show.
Dismissed for caring about its own care.
Given 60-days of sedation and a soft middle finger.

But it’s still here. Still standing. Still asking questions.

Because this—right here—is what patient advocacy actually looks like.

And unlike your (alleged) medical office, “The Site” doesn’t disappear just because it’s inconvenient.

*This is not accurate information. It shows how much she pays attention. “The Site” already spoke with Reasor’s Pharmacy, and they have no problem getting the regular dose Naltrexone (that is covered by Soonercare). “The Site” also spoke to Belmar, a specialty nation-wide compounding pharmacy, and they could provide LDN compounded to 4.5mg for $60/90-day supply. They also had no problem getting it. “The Site” would have found a way to pay the $60 for a 90-day supply. They also didn’t charge a delivery fee, and sent it by 2-Day UPS. So is this medical incompetence, intentional deception, or both? Because when it comes to disabled care, the results are the same.

**Taylor changed her story. She doesn’t realize that “The Site” records every session because it doesn’t trust these people to tell the truth. Soonercare isn’t the issue. It is her and her incompetent staff that is the issue.

***Further mischaracterization via gaslighting to cover her for potential medical malpractice. This isn’t about providing care. This is about providing for the simplest customers with the most money. This is laziness baked in greed.

Context: “The Site” showed up. The system didn’t. Catch up with Part One: Marked Absent by the Machine →